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Medicaid Matters for Kids: Harrison’s Story

We were honored to have Harrison join us for Family Advocacy Week in 2022. Through this event, Harrison and his family discussed his health journey, and why Medicaid Matters in his healthcare.

Harrison was born with hypoxic ischemic encephalopathy, a type of brain dysfunction that occurs when the brain doesn’t receive enough oxygen or blood flow for a period of time. Then, when he was 2 years old, he was diagnosed with quadriplegic cerebral palsy. Harrison also has dystonia – a movement disorder where his muscles contract involuntarily.

“We knew Harrison would have special needs after his birth,” says Megan, Harrison’s mother. “So when he was diagnosed later, we were somewhat prepared."

Harrison receives physical therapy, occupational therapy, and speech therapy regularly. He also receives Botox injections every three months and phenol injections every six months to help with spasticity and pain from dystonia. He will have surgery in October 2022 for deep brain stimulation.

“Our number one worry was how we were going to be able to afford to give Harrison the medical care and equipment he would need, says Megan. “We are thankful for Medicaid, because it allowed us to give our son the medical care that he desperately needs and deserves. Without Medicaid, Harrison wouldn't be where he is today, and as a family we don't have to worry about the costs of the amazing medical care he is receiving. Our family has had to learn to adapt so that Harrison is able to do all of the things that we like to do as a family."

Harrison is now 6 years old and doing well.


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