Life with a Child who has Type 1 Diabetes

During the month of November, parents of children diagnosed with type 1 diabetes will share testimonials with the Speak Now for Kids community. You can learn more about this chronic condition, which is usually diagnosed in children and young adults, by visiting the Juvenile Diabetes Research Foundation (JDRF).


Samson was diagnosed with type 1 diabetes (also known as juvenile diabetes) about two weeks before his second birthday, after we had contacted his pediatrician about to his frequent urination and weight loss. Shocked and confused at first, we were blessed to have a wonderfully encouraging team ready to take care of us when we arrived at St. Joseph’s Children’s Hospital. Our endocrinologist, Dr. Grace Dougan, and our diabetes educator, Juliana Hite, gave us lots of support and listened to our questions and concerns. They reassured us repeatedly that Samson would live a healthy and active life, and he does.

While there are many challenges that go along with living with type 1, or raising a child who has type 1, on any given day Samson acts just like any other normal 3-year-old. He may decide to act like a dog, ride his bike, negotiate to get his way or even climb up on high surfaces to jump off.  He also eats his veggies, but definitely enjoys ice cream — it’s a balance.

Insulin injections are required each time Samson eats carbohydrates, so we have to do lots of carb counting. But, to look at the positive, this has certainly made us more aware of what we eat and has helped our whole family eat healthier. God has given us strength where we didn’t think we had it and grace when we mess up — because we do mess up. But we are so thankful for the times that we live in and the advances that have been made medically in terms of type 1. Samson’s Dexcom, a continuous glucose monitor, helps us keep on top of his blood sugar levels by letting us know if he’s high or low and if he’s rising or falling too quickly. In a few years we will put Samson on an insulin pump which will take the place of injections and give him a little more freedom in what and when he eats. The advancements just keep coming and we are eager and hopeful for a cure.

We want everyone to know what the signs are of type 1 diabetes. Our family has no history of type 1, so his symptoms did not trigger any concern with us at first. While there are many symptoms of type 1 onset, the most common are: weight loss, extreme thirst, frequent urination, and blurred vision. Many type 1 diabetics find out they have the disease only after they end up in the hospital in a coma or after having a seizure due to hyperglycemia (or high blood sugar).

We rejoice in the fact that God spared us a scary experience such as that, and while we hate it every time we hear of a new type 1 diagnosis, we hope every family receiving this news hears  it in as painless and encouraging a way as we did

Sarah is the mother of a 3-year-old boy, Samson, who was diagnosed with type 1 diabetes.

Be the first to comment