Meet Noah B.

Starting today you will have the opportunity to meet each of the 29 All Stars who will be participating in Family Advocacy Day 2014. 

Noah B., age 4 

Hometown: Stevens Point, WI

Hospital: Children’s Hospital of Wisconsin, Milwaukee, WI

Noah is a happy 4-year-old who loves trains, planes and school. Born blue because his organs were shutting down due to heart failure, Noah was immediately taken to the neonatal intensive care unit (NICU). The family was then referred to Children’s Hospital of Wisconsin where pediatric specialists were much better equipped to help Noah.

The doctors at the children’s hospital determined Noah had Shone’s Complex — a congenital heart defect that included severe mitral valve regurgitation, pulmonary hypertension and aortic stenosis. Noah was in heart failure when he arrived at the children’s hospital and in critical condition. Despite surgery to replace Noah’s mitral valve with a mechanical one, he was listed for a heart transplant when he was only 2 months old.

After waiting 80 days, Noah received a new heart and, just 12 days later, he went home. Since then, Noah has not looked back and is growing by leaps and bounds. Thanks to the amazing staff at Children’s Hospital of Wisconsin and the gift of life from a donor family, Noah gets to experience life.

Fact: The two million sickest children on Medicaid account for only six percent of enrollees but 40 percent of costs.

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