Children like Sophia would be helped by the ACE Kids Act
“Through years of hard work, determination, and the support of doctors, therapists, friends, and family, Sophia continues to gratify and amaze us with all that she can do,” says mom, Alicia.
Diagnosed with cerebral palsy, right hemiplegia, and global developmental delay, all before the age of one, it was unknown if she would ever walk, talk or meet other developmental and cognitive milestones.
A team of specialists ranging from neurology to hematology, physical, occupational, and speech therapists, gastroenterologists, ophthalmologists, audiologists, and physiatrists worked together to ensure the very best care for Sophia.
Today Sophia is able to eat and walk independently, and while she is still working on some speech articulation issues, she talks. . . a lot! She continues to defy the odds. Her fine and gross motor coordination have improved and with the support of special educators.
But it has not been easy. Sophia’s potential would not have been realized without early intervention and regular access to intense pediatric therapies and ongoing specialty care via Medicaid.
“We aggressively fought for and obtained access to many services, including pediatric habilitation that are often overlooked, limited or delayed in comprehensive commercial insurance plans,” says Alicia. “Because of this, Sophia has far exceeded her early prognoses and quality of life.”
“The comprehensive coverage and continuity of care provided by Medicaid has been our saving grace,” Alicia continues. Without Medicaid, Sophia would not receive the continuity of care that she needs and deserves.”
Because Sophia requires multiple specialists to care for her condition, the ACE Kids Act would make it easier to coordinate Sophia’s care if she needed to see a pediatric specialist in another state. Once passed by Congress and enacted, the ACE Kids Act would enable teams of pediatric providers to integrate and coordinate care specifically designed for these children.
The ACE Kids Act would help improve how care is delivered to America’s children with complex medical conditions on Medicaid -- kids like Sophia.