Children like Mackenna would be helped by the ACE Kids Act
Mackenna is a pioneer. She was born with her lung and liver fused together, a condition reported only four other times in medical history. Mackenna is the only child known to have survived!
But she is a remarkable young lady for many reasons beyond her health condition. Mackenna is a straight A student, an accomplished pianist and a budding rock climber.
Mackenna was first treated at UCLA Mattel Children's Hospital when she was 4 months old for the highly-specialized treatment she needed that could not be provided at a typical hospital.
In the past five years, she has been hospitalized in the pediatric intensive care unit twice yearly, and her condition is managed by medication.
While her medical condition was expected to get significantly worse over time, Mackenna's health has remained remarkably stable over the years. When new medical complexities arise, her doctors have developed new treatment ideas to keep her healthy.
Mackenna has visited multiple children's hospitals to receive care for her condition, and the ACE Kids Act would help make it easier to coordinate Mackenna's care if she needed to see a pediatric specialist in another state.
The ACE Kids Act would help improve how care is delivered to America’s children with complex medical conditions on Medicaid -- kids like Mackenna.