Children like Grace would be helped by the ACE Kids Act
Grace, 10 years old, is a strong-willed and determined fighter. She needed those traits to battle acute myeloid leukemia, a type of cancer that affects the blood and bone marrow.
Grace was admitted to Children’s Hospital and Medical Center almost two years ago, and it quickly became home for her and her family. The hospital team provided coordinated care to save Grace from this toxic and life-threatening disease. Grace not only received chemotherapy as an oncology patient, she also worked with the teachers at Children’s to stay on top of her education.
“There is no way that any family, regardless of their income, could afford to have a child in the hospital long-term,” her mom says. Grace relies on Medicaid to access treatments and drugs that her primary plan didn’t cover. This is why Grace and her family represented Children’s on Capitol Hill in October to share information about her health journey and the importance of Medicaid with members of Congress.
One important piece of pending legislation Grace talked about with lawmakers is the Advancing Care for Exceptional (ACE) Kids Act. This bill aims to strengthen Medicaid for families like Grace’s — to better coordinate the care of kids dealing with medical complexity, to make it easier for them to see pediatric specialists in another state, and much more. Once passed by Congress and enacted, the ACE Kids Act would enable teams of pediatric providers to integrate and coordinate care specifically designed for these children.
The ACE Kids Act would help improve how care is delivered to America’s children with complex medical conditions on Medicaid -- kids like Grace. This week, the U.S. House of Representatives has a special opportunity to advance this bipartisan legislation.