May 13

Meet Claire: 2021 Family Advocacy Week Champion

Claire is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Claire and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing Claire with necessary health care services, and why the public and our elected officials must invest in the future of patients like Claire.

A few hours after birth, Claire’s skin began to turn blue while she was in the hospital nursery. The neonatologist on call suspected a congenital heart defect and called for a helicopter transport to Le Bonheur Children’s Hospital.

May 12

Meet Liliana: 2021 Family Advocacy Week Champion

Liliana is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Liliana and her family will discuss her health journey, Johns Hopkins All Children's Hospital’s role in providing Liliana with necessary health care services, and why the public and our elected officials must invest in the future of patients like Liliana.

As a newborn, Liliana failed hearing screenings and her echocardiograms were abnormal. Additionally, there were feeding issues, an ear deformity and crooked smile that concerned the doctors. 

May 11

Meet Isabella: 2021 Family Advocacy Week Champion

Isabella is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Isabella and her family will discuss her health journey, UCLA Mattel Children's Hospital’s role in providing Isabella with necessary health care services, and why the public and our elected officials must invest in the future of patients like Isabella.

Isabella was born prematurely and spent three months in the NICU at Huntington Hospital, Pasadena. At 1 week old, she contracted bacterial meningitis, e. coli and it proved to be a difficult path forward. She was intubated, needed a blood transfusion, and put on strong antibiotics.

May 09

Meet Sam: 2021 Family Advocacy Week Champion

Sam is participating in Speak Now for Kids’ Family Advocacy Week from June 13-18, 2021. Through this event, Sam and his family will discuss his health journey, Children’s Minnesota’s role in providing Sam with necessary health care services, and why the public and our elected officials must invest in the future of kids like Sam.

When Sam was 19 months old, he was treated at the University of Iowa Hospital for epileptic seizures. The family relocated to Minneapolis soon after – in part to be closer to the neuroscience group at Children’s Minnesota.

May 08

Meet Mekhi: 2021 Family Advocacy Week Champion

Mekhi is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Mekhi and his family will discuss his health journey, Mt. Washington Pediatric Hospital’s role in providing Mekhi with necessary health care services, and why the public and our elected officials must invest in the future of patients like Mekhi.

Mekhi was born in Baltimore at Mercy Medical Center. At birth he was diagnosed with spina bifida, a cleft pallet, frozen joints and underdeveloped lungs. Mekhi also needed cranial alignments to adjust the bones in his skull.

May 07

Meet Sha'Miya: 2021 Family Advocacy Week Champion

Sha'Miya is participating in Speak Now for Kids’ Family Advocacy Week from June 13-18, 2021. Through this event, Sha'Miya and her family will discuss her health journey, Joe DiMaggio Children’s Hospital’s role in providing Sha'Miya with necessary health care services, and why the public and our elected officials must invest in the future of kids like Sha'Miya.

In April 2020, Shantel, Sha'Miya’s mother, knew something was off when her daughter started sleeping more and losing weight. They soon noticed a lump on Sha’Miya’s upper thigh and went to Joe DiMaggio Children’s Hospital to have it examined. Surgeons removed the cyst, but tests revealed that Sha'Miya had acute myeloid leukemia (AML).

May 05

Meet JJ: 2021 Family Advocacy Week Champion

JJ is participating in Speak Now for Kids’ Family Advocacy Week from June 13-18, 2021. Through this event, JJ and his family will discuss his health journey, El Paso Children’s Hospital’s role in providing JJ with necessary health care services, and why the public and our elected officials must invest in the future of kids like JJ.

When JJ was two years old, he was diagnosed with Pre B ALL Leukemia, an aggressive cancer that affects the bone marrow and blood. The family was devastated but placed their son’s care in the specialists at El Paso Children’s Hospital.

Apr 29

Let’s Stay Connected This Mental Health Awareness Month

Last year we introduced you to Kate, a vibrant and active young girl who received care for her anxiety, sensory integration disorder, and ADHD from Children’s Hospital Colorado’s Pediatric Mental Health Institute after experiencing suicidal thoughts.

Dec 17

2020: A Year to Remember

What a year it has been yet it would have been far more challenging for children’s health and children’s hospitals without your valiant support. And for that support, we are grateful.

Oct 05

Family Advocacy Week 2020: “Kids’ Health, Our Future”

This past summer, over 50 patient families from 37 children’s hospitals in 22 states gathered virtually via the Speak Now for Kids Family Advocacy Week to advocate for children’s health with federal lawmakers. For many families, the experience marked the first time they had ever spoken with their elected officials.

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