May 28

Meet Emma: 2021 Family Advocacy Week Champion

Emma is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Emma and her family will discuss her health journey, UH Rainbow Babies & Children's Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emma.

Following a COVID-19 diagnosis, 4-year-old Emma had a persistently high fever and vague abdominal pain. Due to an unusual urine culture, doctors thought Emma might have a UTI but IV antibiotics and a second, clean urine culture led her team of providers to investigate further.

May 27

Meet Kevin: 2021 Family Advocacy Week Champion

Kevin is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kevin and his family will discuss his health journey, Le Bonheur Children’s Hospital’s role in providing Kevin with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

At Kevin’s 6-month appointment with his pediatrician, there were a few milestones he hadn't quite met, but the doctors said they would reassess when Kevin was 9 months old. However, before that appointment Kevin was dropped at daycare and a skull fracture sent him to the ER.

May 26

Meet Kairi: 2021 Family Advocacy Week Champion

Kairi is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kairi and her family will discuss her health journey, Children’s Hospital Los Angeles’ (CHLA) role in providing Kairi with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kairi.

When Kairi was 8 years old, her pediatrician discovered an enlarged spleen and recommended getting an ultrasound. That same day, her pain worsened, and Kairi was rushed to the emergency room at Children’s Hospital Los Angeles where she was admitted for two weeks.

May 26

Meet Braden: 2021 Family Advocacy Week Champion

Braden is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Braden and his family will discuss his health journey, the Iowa Pediatric Healthcare Collaborative’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Braden.

At birth, Braden was diagnosed with campomelic dysplasia, which is characterized by facial anomalies, a cleft palate, and shortening and bowing of long bones. He was also diagnosed with Pierre Robin syndrome, a rare congenital birth defect characterized by an underdeveloped jaw, backward displacement of the tongue and upper airway obstruction. Since then, the network of children’s hospitals in Iowa have provided essential care for Braden. 

May 25

Meet Kate: 2021 Family Advocacy Week Champion

Kate is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kate and her family will discuss her health journey, Nemours/Alfred I. duPont Hospital for Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kate.

When Kate was about 18 months old, her parents noticed her left eye wiggled, especially when she was tired. Her primary care provider referred Kate to an ophthalmologist that resulted in an MRI.

May 24

Meet Cameron: 2021 Family Advocacy Week Champion

Cameron is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Cameron and his family will discuss his health journey, Le Bonheur Children’s Hospital’s role in providing Cameron with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

At birth, Cameron had difficulty breathing and was diagnosed with meconium aspiration syndrome and hypoxia.

May 24

Meet Mary Michael: 2021 Family Advocacy Week Champion

Mary Michael is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Mary Michael and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Mary Michael.

When Mary Michael was 7 months old, her pediatrician suggested she see a specialist at Le Bonheur Children’s Hospital following difficulties identifying the cause of her disrupted breathing.

May 23

Meet Carson: 2021 Family Advocacy Week Champion

Carson is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Carson and his family will discuss his health journey, Children’s Wisconsin’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Carson.

When Carson was 14 years old, he attempted to take his own life. He was found alive and airlifted to Children’s Hospital Wisconsin.

May 22

Meet Hadley and Gipson: 2021 Family Advocacy Week Champion

Hadley and Gipson are participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Hadley, Gipson and their family will share information about their health journey, Children’s Hospital of San Antonio’s role in providing Hadley and Gipson with necessary health care services, and why the public and our elected officials must invest in the future of patients like them.

At 10 months old, Hadley needed to have surgery to untether her spinal cord, but first the doctors wanted to run genetic tests to further understand her developmental delays.

May 21

Meet Samuel: 2021 Family Advocacy Week Champion

Samuel is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Samuel and his family will share information about his health journey, Connecticut Children’s Hospital’s role in providing Samuel with necessary health care services, and why the public and our elected officials must invest in the future of patients like Samuel.

Samuel first struggled with following directions and listening to his mother, and the issues worsened at the onset of the COVID-19 pandemic.

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