May 24

Meet Cameron: 2021 Family Advocacy Week Champion

Cameron is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Cameron and his family will discuss his health journey, Le Bonheur Children’s Hospital’s role in providing Cameron with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

At birth, Cameron had difficulty breathing and was diagnosed with meconium aspiration syndrome and hypoxia.

May 24

Meet Mary Michael: 2021 Family Advocacy Week Champion

Mary Michael is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Mary Michael and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Mary Michael.

When Mary Michael was 7 months old, her pediatrician suggested she see a specialist at Le Bonheur Children’s Hospital following difficulties identifying the cause of her disrupted breathing.

May 23

Meet Carson: 2021 Family Advocacy Week Champion

Carson is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Carson and his family will discuss his health journey, Children’s Wisconsin’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Carson.

When Carson was 14 years old, he attempted to take his own life. He was found alive and airlifted to Children’s Hospital Wisconsin.

May 22

Meet Hadley and Gipson: 2021 Family Advocacy Week Champion

Hadley and Gipson are participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Hadley, Gipson and their family will share information about their health journey, Children’s Hospital of San Antonio’s role in providing Hadley and Gipson with necessary health care services, and why the public and our elected officials must invest in the future of patients like them.

At 10 months old, Hadley needed to have surgery to untether her spinal cord, but first the doctors wanted to run genetic tests to further understand her developmental delays.

May 21

Meet Samuel: 2021 Family Advocacy Week Champion

Samuel is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Samuel and his family will share information about his health journey, Connecticut Children’s Hospital’s role in providing Samuel with necessary health care services, and why the public and our elected officials must invest in the future of patients like Samuel.

Samuel first struggled with following directions and listening to his mother, and the issues worsened at the onset of the COVID-19 pandemic.

May 20

Meet Alana: 2021 Family Advocacy Week Champion

Alana is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Alana and her family will discuss her health journey, Children’s Hospital of Philadelphia’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Alana.

When then 1-year-old Alana was diagnosed with sickle cell disease (SCD), Children’s Hospital of Philadelphia provided her mother, Merisha, with information and care.

May 19

Meet Michael: 2021 Family Advocacy Week Champion

Michael is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Michael and his family will discuss his health journey, Nicklaus Children’s Hospital’s role in providing Michael with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

Michael was diagnosed with hepatosplenic T-cell lymphoma at 19 years old. It’s a rare cancer affecting the liver, spleen and bone marrow.

May 18

Meet Ethan: 2021 Family Advocacy Week Champion

Ethan is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Ethan and his family will discuss his health journey, Gillette Children's Specialty Healthcare’s role in providing Ethan with necessary health care services, and why the public and our elected officials must invest in the future of child patients like Ethan.

Ethan was born with distal arthrogryposis, a disorder characterized by joint deformities that restrict movement in the hands and feet.

May 17

Meet Kimberly: 2021 Family Advocacy Week Champion

Kimberly is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kimberly and her family will discuss her health journey, Children’s Specialized Hospital’s role in providing Kimberly with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kimberly.

At 21, nasal discharge became a persistent issue for Kimberly. At first it was chalked up to allergies, however, antihistamines provided no relief. She was then admitted to the emergency room for additional testing. 

May 17

Meet Zach: 2021 Family Advocacy Week Champion

Zach is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Zach and his family will discuss his health journey, Wolfson Children’s Hospital’s role in providing Zach with necessary health care services, and why the public and our elected officials must invest in the future of patients like Zach.

Zach’s parents noticed his behavior had changed but they just chalked it up to typical 15-year-old adolescent behavior. However, they soon realized it was something more. 

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