May 31

Meet Sarah and Amelia: 2021 Family Advocacy Week Champions

Sarah and Amelia are participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Sarah, Amelia and their family will discuss their health journey, UCSF Benioff Children’s Hospital’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sarah and Amelia.

At birth, Sarah had a heart murmur and was soon diagnosed with hepatitis C. She was quickly monitored by a cardiologist and hepatologist.

May 31

Meet Jasmine: 2021 Family Advocacy Week Champion

Jasmine is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Jasmine and her family will discuss her health journey, Texas Children’s Hospital’s role in providing Jasmine with necessary health care services, and why the public and our elected officials must invest in the future of patients like Jasmine.

In the past year, 12-year-old Jasmine’s behavior changed. She lost interest in her usual activities and started spending more time on her phone and social media.

May 30

Meet Alana K: 2021 Family Advocacy Week Champion

Alana is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Alana and her family will discuss her health journey, Gillette Children’s Specialty Healthcare’s role in providing Alana with necessary health care services, and why the public and our elected officials must invest in the future of patients like Alana.

When Alana was 3 years old, her parents noticed that her physical abilities were different from her peers and sought medical advice.

May 29

Meet Tyler: 2021 Family Advocacy Week Champion

Tyler is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Tyler and his family will discuss his health journey, Gillette Children’s Specialty Healthcare’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Tyler.

In April of 2015, Tyler was diagnosed with Duchenne muscular dystrophy (DMD), a severe type of muscular dystrophy that primarily affects boys, at 2 years old.

May 28

Meet Richie: 2021 Family Advocacy Week Champion

Richie is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this special event, Richie and his family will share information about his health journey, Joe DiMaggio Children’s Hospital’s role in providing Richie with necessary health care services, and why the public and our elected officials must invest in the future of patients like Richie.

When Richie was 4, he had some pain in his leg. Following a doctor’s appointment, he was sent to the ER and transferred to the main campus of Joe DiMaggio Children’s Hospital.

May 28

Meet Emma: 2021 Family Advocacy Week Champion

Emma is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Emma and her family will discuss her health journey, UH Rainbow Babies & Children's Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emma.

Following a COVID-19 diagnosis, 4-year-old Emma had a persistently high fever and vague abdominal pain. Due to an unusual urine culture, doctors thought Emma might have a UTI but IV antibiotics and a second, clean urine culture led her team of providers to investigate further.

May 27

Meet Kevin: 2021 Family Advocacy Week Champion

Kevin is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kevin and his family will discuss his health journey, Le Bonheur Children’s Hospital’s role in providing Kevin with necessary health care services, and why the public and our elected officials must invest in the future of patients like him.

At Kevin’s 6-month appointment with his pediatrician, there were a few milestones he hadn't quite met, but the doctors said they would reassess when Kevin was 9 months old. However, before that appointment Kevin was dropped at daycare and a skull fracture sent him to the ER.

May 26

Meet Kairi: 2021 Family Advocacy Week Champion

Kairi is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kairi and her family will discuss her health journey, Children’s Hospital Los Angeles’ (CHLA) role in providing Kairi with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kairi.

When Kairi was 8 years old, her pediatrician discovered an enlarged spleen and recommended getting an ultrasound. That same day, her pain worsened, and Kairi was rushed to the emergency room at Children’s Hospital Los Angeles where she was admitted for two weeks.

May 26

Meet Braden: 2021 Family Advocacy Week Champion

Braden is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Braden and his family will discuss his health journey, the Iowa Pediatric Healthcare Collaborative’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Braden.

At birth, Braden was diagnosed with campomelic dysplasia, which is characterized by facial anomalies, a cleft palate, and shortening and bowing of long bones. He was also diagnosed with Pierre Robin syndrome, a rare congenital birth defect characterized by an underdeveloped jaw, backward displacement of the tongue and upper airway obstruction. Since then, the network of children’s hospitals in Iowa have provided essential care for Braden. 

May 25

Meet Kate: 2021 Family Advocacy Week Champion

Kate is participating in Speak Now for Kids Family Advocacy Week from June 13-18, 2021. Through this event, Kate and her family will discuss her health journey, Nemours/Alfred I. duPont Hospital for Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kate.

When Kate was about 18 months old, her parents noticed her left eye wiggled, especially when she was tired. Her primary care provider referred Kate to an ophthalmologist that resulted in an MRI.

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