Jun 13

Keeping Kids Healthy Should Be a Slam Dunk!

The Children’s Hospital Association and other pediatric champions hosted a briefing today for congressional staff about   Medicaid and the Children’s Health Insurance Program (CHIP).  The briefing addressed the populations served by each program, benefits and services offered, and the future of children’s coverage.

Jun 13

Family Advocacy Day Hero -- Meet Erin P.

Erin P., Age 10  ErinP.jpg
Hometown: Kirtland, OH
Hospital: University Hospitals Rainbow Babies and Children’s Hospital, Cleveland, OH

Erin was just 3 years old when she was diagnosed with acute lymphoblastic leukemia (ALL). After going through two years of chemotherapy at University Hospitals Rainbow Babies and Children’s Hospital, Erin received a clean bill of health. Unfortunately, during a routine checkup just 19 months after her treatment ended, it was discovered that Erin’s cancer had returned. This led to immediate plans for Erin to receive a bone marrow transplant. She endured months of mostly inpatient chemotherapy and rounds of radiation leading up to the transplant. 

Jun 12

Family Advocacy Day Hero -- Meet Kaylin P.

Kaylin P., Age 19  Kaylin P.ver.3.jpeg
Hometown: Methuen, MA
Hospital: Boston Children’s Hospital, Boston, MA

Kaylin was born with lymphatic malformation cystic hygroma, a disorder which causes fluid buildup in the lymphatic system and results in cysts on the neck and face. Nineteen-year-old Kaylin has already undergone more than 100 surgeries at Boston Children’s Hospital, including jaw reconstruction, tongue reduction surgery, laser treatments, eye surgery, tracheotomy and sclerotherapy. 

Jun 11

Family Advocacy Hero -- Meet Max P.

Max P., Age 9  Max P.jpg
Hometown: San Clemente, CA
Hospital: Children’s Hospital Los Angeles, Los Angeles, CA

Witty and wise for his age, 9-year-old Max Page has learned a lot from overcoming challenges and seldom lets anything slow him down. Born with tetralogy of Fallot, a congenital heart defect, Max has had multiple heart surgeries at Children’s Hospital Los Angeles and is required to have a pacemaker.

Jun 10

Family Advocacy Day Hero -- Meet Awo O.

Awo O., Age 14  
Hometown: Dayton, OH
Hospital: Dayton Children’s Hospital, Dayton, OH

 

Awo’s smile can light up a room. Whether she is acting, singing or playing volleyball, this active teen has a bubbly personality and fun loving attitude that rubs off on everyone she comes into contact with. She has learned to overcome her sickle cell disease with a positive attitude and, alongside her mom, is helping to pave the way for better treatment for adult sickle cell patients.

Jun 09

Family Advocacy Day Hero -- Alyssa M.

Alyssa M., Age 8 Alyssa M.2.jpg
Hometown: Chicago, IL
Hospital: Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

Alyssa is an outgoing and dynamic 8-year-old girl, who loves fashion, dancing and hanging out with her older brothers and sisters.

Jun 08

Family Advocacy Day Hero -- Robert L.

Robert L., Age 18  Robert L
Hometown: East Greenwich, RI
Hospital: Boston Children’s Hospital, Boston, MA

You can’t tell by looking at Robert — a healthy, happy 17-year-old — that he has endured 16 surgeries in his life. 

Jun 07

Family Advocacy Day Hero -- Emmy K.

Emmy K., Age 7  Emmy K
Hometown: Plano, TX
Hospital: Children’s Medical Center Dallas, Dallas, TX

One day, at age 3, Emmy woke up without the ability to walk or speak. After several tests, she was diagnosed with acute disseminated encephalomyelitis (ADEM), a rare disease that aggressively attacked the healthy tissue in her brain. Emmy was placed into a medically-induced coma and was at Children’s Medical Center Dallas for more than a month. Thanks to the expertise of the hospital’s clinical care team, Emmy survived her life-threatening medical episode.

Jun 06

Family Advocacy Day Hero -- Meet Keely J.

Keely J., Age 3   Keely J
Hometown: Ormond Beach, FL
Hospital: Wolfson Children’s Hospital, Jacksonville, FL

Immediately after a premature birth, Keely was rushed to the Level III neonatal intensive care unit at Wolfson Children’s Hospital. She weighed only 2 pounds, 8 ounces and was diagnosed with Pierre Robin syndrome, a congenital condition that causes her to have a smaller-than-normal lower jaw and a tongue that falls back in her throat. Her tongue condition can obstruct her airway and causing difficulty breathing; it can also interfere with swallowing and feeding.

Jun 05

Family Advocacy Day Hero -- Meet Christopher E.

Christopher E., Age 4 Christopher E.jpg
Hometown: Howell, NJ
Hospital: The Children’s Hospital of Philadelphia, Philadelphia, PA

Christopher needed a new heart, and soon. The doctors at The Children’s Hospital of Philadelphia (CHOP) knew this was a possibility for Chris before he was even born. While still in the womb, Chris was diagnosed with abnormal aortic and mitral valves, a rare form of congenital heart disease. He underwent in utero surgery to open the aortic valve; the doctors hoped the catheter intervention would allow his heart to develop and function more normally.

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