May 18

Meet Lydia: 2022 Family Advocacy Day Champion

Lydia is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Lydia and her family will discuss her health journey, Children’s Hospital of Philadelphia’s  role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Lydia.

When Lydia was about 4 years old, her mother, Jennifer, first noticed challenging behaviors. Lydia would become distressed when transitioning between activities or settings and suffered from separation anxiety.

May 17

Meet Abbi: 2022 Family Advocacy Day Champion

Abbi is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Abbi and her family will discuss her health journey, Children’s Wisconsin’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Abbi.

The COVID-19 pandemic has affected Abbi and her family greatly. Everyone has been isolated, especially Abbi and her siblings. Abbi's last year of a "typical" school year was third grade. She is now in sixth grade and a lot has changed physically, emotionally and developmentally.

May 16

Meet Charlie: 2022 Family Advocacy Day Champion

Charlie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Charlie and his family will discuss his health journey, ChildServe’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Charlie.

Charlie was born at Highland Park Hospital in Chicago. At just six days old, during his first pediatric check-up, doctors discovered he was hypothermic. He was sent to the ER where a spinal tap revealed he had sepsis and suspected bacterial meningitis. He spent the next 30 days in the hospital.

May 13

Meet Emmily: 2022 Family Advocacy Day Champion

Emmily is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Emmily and her family will discuss her health journey, Children’s Minnesota’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emmily.

When Emmily was 13, she tested positive for influenza B. She started to have severe breathing issues when her mother, Amy, took her to Urgent Care. They were immediately sent to the emergency room at Children’s Minnesota where doctors determined Emmily was critically ill—suffering from respiratory issues including an acute respiratory infection (influenza B), bilateral acute respiratory distress syndrome (ARDS) and Methicillin-resistant Staphylococcus aureus (MRSA). She also had pneumonia and was in severe septic shock. 

May 11

Meet Emma: 2022 Family Advocacy Day Champion

Emma is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Emma and her family will discuss her health journey, Children’s Hospital Colorado’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emma.

Emma battled her eating disorder for several years, but her mother, Christine, realized she needed a higher level of care. Emma was taken to Children’s Hospital Colorado, where the doctors ordered an electrocardiogram to monitor her heart. The results revealed bradycardia—a slower than normal heart rate—and reinforced the fact that she needed more immediate intervention. She was admitted to the hospital and from that point on, Emma’s condition was treated seriously.

May 09

Meet Anthony: 2022 Family Advocacy Day Champion

Anthony is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Anthony and his family will discuss his health journey, Children’s Specialized Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Anthony.

At 18 months, Anthony had around 10 words in his vocabulary, but others just weren’t coming. His mother, Yaqeulin, noticed things weren’t developing like they should be. When Yaquelin reached out to Anthony’s pediatrician, there weren’t a ton of answers, so she did some additional research. 

May 05

Meet Eliana: 2022 Family Advocacy Day Champion

Eliana is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Eliana and her family will discuss her health journey, UH Rainbow Babies & Children Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Eliana.

In December 2020, 14-year-old Eliana and her family contracted COVID-19. Eliana had minor symptoms but seemed to recover. However, 10 months later in October 2021, her COVID symptoms reoccurred - and this time were severe. Eliana was taken by ambulance to the emergency department—first to University Hospitals Elyria Medical Center, then to UH Rainbow Babies & Children’s Hospital, where she was hospitalized for 8 days.

Apr 25

Medicaid Matters for Kids: Senya's Story

We were honored to have Senya join us for Family Advocacy Week in 2021, and recently reached out to mom Theresa for an update as part of our Medicaid Matters for Kids Series.

During Theresa’s pregnancy, doctors were closely monitoring Senya's growth as they had noticed abnormalities during an ultrasound. He was born premature at 33 weeks.

At four months old Senya was diagnosed with microvillus inclusion disease, a rare genetic disease of the intestine that causes severe diarrhea and an inability to absorb nutrients. He was also diagnosed with cholestasis, a condition in which the flow of bile from the liver is reduced or blocked.

Mar 21

Medicaid Matters for Kids: Meet Kevin

We were honored to have Kevin join us for Family Advocacy Week in 2021 and recently reached out to mom Autum for an update as part of our Medicaid Matters for Kids Series.

At Kevin’s six-month appointment with his pediatrician, there were a few milestones he hadn't quite met, but the doctors said they would reassess at nine-months-old. However, before that appointment Kevin was accidentally dropped at daycare and a skull fracture sent him to the ER.

Mar 15

Meet the Child Life Specialists at McLane Children's Hospital

This Child Life Month, we're recognizing Tina Ulanowski, Child Life Manager, and the team at McLane Children’s Hospital in Temple, TX.

Tina has been a child life specialist for 35 years and has been working at McLane Children’s Hospital for the last year and a half.

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