May 25

Meet Madeline: 2022 Family Advocacy Day Champion

Madeline is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Madeline and her family will discuss her health journey, Connecticut Children’s Medical Center’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Madeline.

Madeline’s first experience with arthritis was at the age of 13.

May 24

Meet Paisley: 2022 Family Advocacy Day Champion

Paisley is participating in Speak Now for Kids Family Advocacy Day - June 12-14, 2022. Through this event, Paisley and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Paisley.

Following the 20-week anatomy scan, doctors were concerned about signs of abnormalities with Paisley. After Paisley was born with a cleft pallet, she remained in the NICU where she was diagnosed with dwarfism and Schwartz-Jampel syndrome, a rare condition characterized by permanent muscle stiffness and bone abnormalities.

May 23

Meet Eddie: 2022 Family Advocacy Day Champion

Eddie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Eddie and his family will discuss his health journey, Dayton Children’s Hospital’s role in providing him with necessary health care services, why Medicaid matters in his healthcare,  and why the public and our elected officials must invest in the future of patients like Eddie.

Eddie was born premature at 23 weeks and weighed one and half pounds. Doctors diagnosed him with bronchopulmonary dysplasia, a form of chronic lung disease that can be common in low birth weight and premature infants.

May 20

Meet Lizzy: 2022 Family Advocacy Day Champion

Lizzy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Lizzy and her family will discuss her health journey, St. Joseph’s Children’s Hospital/BayCare Kids’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Lizzy.

When Lizzy was 7, she started exhibiting issues with impulse control and oppositional behaviors before she was diagnosed with ADHD and depression. After several physical altercations in school and other unintentional dangerous behaviors, she started treatment.

May 19

Meet Isabelle: 2022 Family Advocacy Day Champion

Isabelle is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Isabelle and her family will discuss her health journey, Blank Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Isabelle.

As 12-year-old Isabelle was experiencing the growing pains of middle school, her mother, Alicia, noticed a change in her daughter’s behavior.

May 18

Meet Lydia: 2022 Family Advocacy Day Champion

Lydia is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Lydia and her family will discuss her health journey, Children’s Hospital of Philadelphia’s  role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Lydia.

When Lydia was about 4 years old, her mother, Jennifer, first noticed challenging behaviors. Lydia would become distressed when transitioning between activities or settings and suffered from separation anxiety.

May 17

Meet Abbi: 2022 Family Advocacy Day Champion

Abbi is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Abbi and her family will discuss her health journey, Children’s Wisconsin’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Abbi.

The COVID-19 pandemic has affected Abbi and her family greatly. Everyone has been isolated, especially Abbi and her siblings. Abbi's last year of a "typical" school year was third grade. She is now in sixth grade and a lot has changed physically, emotionally and developmentally.

May 16

Meet Charlie: 2022 Family Advocacy Day Champion

Charlie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Charlie and his family will discuss his health journey, ChildServe’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Charlie.

Charlie was born at Highland Park Hospital in Chicago. At just six days old, during his first pediatric check-up, doctors discovered he was hypothermic. He was sent to the ER where a spinal tap revealed he had sepsis and suspected bacterial meningitis. He spent the next 30 days in the hospital.

May 13

Meet Emmily: 2022 Family Advocacy Day Champion

Emmily is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Emmily and her family will discuss her health journey, Children’s Minnesota’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emmily.

When Emmily was 13, she tested positive for influenza B. She started to have severe breathing issues when her mother, Amy, took her to Urgent Care. They were immediately sent to the emergency room at Children’s Minnesota where doctors determined Emmily was critically ill—suffering from respiratory issues including an acute respiratory infection (influenza B), bilateral acute respiratory distress syndrome (ARDS) and Methicillin-resistant Staphylococcus aureus (MRSA). She also had pneumonia and was in severe septic shock. 

May 11

Meet Emma: 2022 Family Advocacy Day Champion

Emma is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Emma and her family will discuss her health journey, Children’s Hospital Colorado’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Emma.

Emma battled her eating disorder for several years, but her mother, Christine, realized she needed a higher level of care. Emma was taken to Children’s Hospital Colorado, where the doctors ordered an electrocardiogram to monitor her heart. The results revealed bradycardia—a slower than normal heart rate—and reinforced the fact that she needed more immediate intervention. She was admitted to the hospital and from that point on, Emma’s condition was treated seriously.

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