Jun 02

Meet Oliver: 2022 Family Advocacy Day Champion

Oliver is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Oliver and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Oliver.

Oliver was born with a large mass on his chest, stretching from his sternum, underneath his arm, and onto his back.

Jun 01

Meet Pierce: 2022 Family Advocacy Day Champion

Pierce is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Pierce and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Pierce.

In April 2017, when Pierce was almost two years old, he started experiencing a low-grade fever. When he did not respond to antibiotics, his parents decided to admit him to their local hospital for lab work. The results of the lab work were concerning, and they were directed to Children's Hospital Los Angeles for a possible diagnosis of leukemia/lymphoma.

Jun 01

Meet Sarah: 2022 Family Advocacy Day Champion

Sarah is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sarah will discuss her health journey, Children’s Hospital Los Angeles’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sarah.

When Sarah was 11 years old, she was diagnosed with eosinophilic gastroenteritis, a rare autoimmune condition of the intestinal tract.

May 31

Meet Leone: 2022 Family Advocacy Day Champions

Leone is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Leone and his their family will discuss his health journey, Children's Health Children's Medical Center Dallas’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Leone.

When Leone was two years old, he was diagnosed with acute lymphocytic leukemia, a cancer that affects the blood and bone marrow. The specialists at Children's Health Children's Medical Center Dallas performed blood tests, a spinal tap and inserted a port for Leone’s chemotherapy.

May 30

Meet Melanie: 2022 Family Advocacy Day Champion

Melanie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Melanie and her family will discuss her health journey, why Medicaid matters in her healthcare, Connecticut Children’s Medical Center’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Melanie.

When Melanie was 14 years old, she discovered a large mass on the left side of her neck. Her parents took her to see her pediatrician to run some tests and she was diagnosed with mononucleosis. However, six months later when the lump on her neck was still there, Melanie’s parents took her to a local hospital for a CT scan and they were referred to Connecticut Children's Medical Center.

May 29

Meet Carter: 2022 Family Advocacy Day Champion

Carter is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Carter and his family will discuss his health journey, Cleveland Clinic Children’s Hospital for Rehabilitation’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Carter.

Carter was diagnosed with congenital heart disease when he was just three days old and spent time in the NICU at Cleveland Clinic Children’s Hospital. He had critical aortic stenosis and blood was not flowing properly from his heart.

May 29

Meet AJ: 2022 Family Advocacy Day Champion

AJ is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, AJ and his family will discuss his health journey, Le Bonheur Children's Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like AJ.

AJ was born with pulmonary valve stenosis, a congenital heart defect which causes narrowing of the valve between the heart chamber and the lung arteries. Shortly after he was born, he was immediately transferred from Methodist Germantown to Le Bonheur Children's Hospital.

May 28

Meet Sebastian: 2022 Family Advocacy Day Champion

Sebastian is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sebastian and his family will discuss his health journey, Nemours Children's Hospital, Florida’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sebastian.

On Mother’s Day 2020, Sebastian and his parents went to the ER at Nemours Children’s Hospital, Florida. However, due to visiting limitations because of COVID-19, only one parent was allowed to stay. After a CAT scan, the attending physician discovered a brain tumor and Sebastian was immediately admitted to the PICU.

May 27

Meet Sienna: 2022 Family Advocacy Day Champion

Sienna is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sienna and her family will discuss her health journey, CHOC Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sienna.

Sienna was born with Down syndrome and needed extra care from specialists at CHOC Children’s. Her doctors were concerned with possible thyroid issues, so Sienna was referred to a neurologist for regular monitoring in case of blood cancers and thyroid issues.

May 25

Meet Christian: 2022 Family Advocacy Day Champion

Christian is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Christian and his family will discuss his health journey, Connecticut Children’s Medical Center’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Christian.

When Christian was born the whites of his eyes had a bluish grey tint. He was diagnosed with osteogenesis imperfecta, a genetic bone disorder also known as brittle bone disease.

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