May 29

Meet Carter: 2022 Family Advocacy Day Champion

Carter is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Carter and his family will discuss his health journey, Cleveland Clinic Children’s Hospital for Rehabilitation’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Carter.

Carter was diagnosed with congenital heart disease when he was just three days old and spent time in the NICU at Cleveland Clinic Children’s Hospital. He had critical aortic stenosis and blood was not flowing properly from his heart.

May 29

Meet AJ: 2022 Family Advocacy Day Champion

AJ is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, AJ and his family will discuss his health journey, Le Bonheur Children's Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like AJ.

AJ was born with pulmonary valve stenosis, a congenital heart defect which causes narrowing of the valve between the heart chamber and the lung arteries. Shortly after he was born, he was immediately transferred from Methodist Germantown to Le Bonheur Children's Hospital.

May 28

Meet Sebastian: 2022 Family Advocacy Day Champion

Sebastian is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sebastian and his family will discuss his health journey, Nemours Children's Hospital, Florida’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sebastian.

On Mother’s Day 2020, Sebastian and his parents went to the ER at Nemours Children’s Hospital, Florida. However, due to visiting limitations because of COVID-19, only one parent was allowed to stay. After a CAT scan, the attending physician discovered a brain tumor and Sebastian was immediately admitted to the PICU.

May 27

Meet Sienna: 2022 Family Advocacy Day Champion

Sienna is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sienna and her family will discuss her health journey, CHOC Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sienna.

Sienna was born with Down syndrome and needed extra care from specialists at CHOC Children’s. Her doctors were concerned with possible thyroid issues, so Sienna was referred to a neurologist for regular monitoring in case of blood cancers and thyroid issues.

May 25

Meet Christian: 2022 Family Advocacy Day Champion

Christian is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Christian and his family will discuss his health journey, Connecticut Children’s Medical Center’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Christian.

When Christian was born the whites of his eyes had a bluish grey tint. He was diagnosed with osteogenesis imperfecta, a genetic bone disorder also known as brittle bone disease.

May 25

Meet Madeline: 2022 Family Advocacy Day Champion

Madeline is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Madeline and her family will discuss her health journey, Connecticut Children’s Medical Center’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Madeline.

Madeline’s first experience with arthritis was at the age of 13.

May 24

Meet Paisley: 2022 Family Advocacy Day Champion

Paisley is participating in Speak Now for Kids Family Advocacy Day - June 12-14, 2022. Through this event, Paisley and her family will discuss her health journey, Le Bonheur Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Paisley.

Following the 20-week anatomy scan, doctors were concerned about signs of abnormalities with Paisley. After Paisley was born with a cleft pallet, she remained in the NICU where she was diagnosed with dwarfism and Schwartz-Jampel syndrome, a rare condition characterized by permanent muscle stiffness and bone abnormalities.

May 23

Meet Eddie: 2022 Family Advocacy Day Champion

Eddie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Eddie and his family will discuss his health journey, Dayton Children’s Hospital’s role in providing him with necessary health care services, why Medicaid matters in his healthcare,  and why the public and our elected officials must invest in the future of patients like Eddie.

Eddie was born premature at 23 weeks and weighed one and half pounds. Doctors diagnosed him with bronchopulmonary dysplasia, a form of chronic lung disease that can be common in low birth weight and premature infants.

May 20

Meet Lizzy: 2022 Family Advocacy Day Champion

Lizzy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Lizzy and her family will discuss her health journey, St. Joseph’s Children’s Hospital/BayCare Kids’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Lizzy.

When Lizzy was 7, she started exhibiting issues with impulse control and oppositional behaviors before she was diagnosed with ADHD and depression. After several physical altercations in school and other unintentional dangerous behaviors, she started treatment.

May 19

Meet Isabelle: 2022 Family Advocacy Day Champion

Isabelle is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Isabelle and her family will discuss her health journey, Blank Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Isabelle.

As 12-year-old Isabelle was experiencing the growing pains of middle school, her mother, Alicia, noticed a change in her daughter’s behavior.

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