Jun
09
Posted by Joe DiMaggio Children's Hospital
Kealy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Kealy and her family will discuss her health journey, Joe DiMaggio Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kealy.
Kealy’s parents were giving her a bath when they found a tiny bump on her skull. They took her to a pediatrician and were told to keep an eye on it. Once they noticed changes, they were referred to a pediatric neurosurgeon and scheduled the next day for tumor removal.
Jun
08
Posted by Joe DiMaggio Children's Hospital
Da-realis is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Da-realis and his family will discuss his health journey, Joe DiMaggio Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Da-realis.
One morning, Da-realis woke up with chest pain and breathing issues. He was admitted to the hospital and the doctors began running tests. The next morning everything began to go downhill. He was intubated, his vocal cords were damaged and then he was transferred to Joe DiMaggio Children's Hospital.
Jun
07
Posted by Wolfson Children's Hospital
Dylan is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Dylan and her family will discuss her health journey, Wolfson Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Dylan.
Dylan was diagnosed with gastroschisis, a rare defect where the intestine protrudes through the right side of the umbilical cord, during a prenatal ultrasound. Dylan was born with her small intestine, large intestine, stomach, kidney and liver outside of her body.
Jun
07
Posted by Mt. Washington Pediatric Hospital
Hannah-Vanyssa is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Hannah-Vanyssa and her family will discuss her health journey, Mt. Washington Pediatric Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Hannah-Vanyssa.
Hannah-Vanyssa was born with Tetralogy of Fallot, a complex birth defect of the heart.
Jun
06
Posted by Children's Hospital Los Angeles
Tommy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Tommy and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Tommy.
Tommy’s mother, Cara, went into premature labor and after eight days she delivered Tommy at 23 weeks gestation. The original NICU was unable to provide the treatment he needed after about two months. However, they managed to keep her in labor for several days. The original NICU was unable to provide the treatment he needed after about eight weeks.
Jun
06
Posted by Children's Hospital Los Angeles
Ella is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Ella and her family will discuss her health journey, Children’s Hospital Los Angeles’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Ella.
When Ella was two years old she was diagnosed with a stage 4, high-risk neuroblastoma. Neuroblastoma is a solid cancer of the nerve tissue of the sympathetic nervous system and stage 4 meant that Ella’s cancer had spread to other parts of her body.
Jun
05
Posted by Choc Children's
Madison AKA Maddy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Maddy and her family will discuss her health journey, CHOC Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Maddy.
Maddy has been sick off and on since birth. “There were always strange severe things with little explanation,” says Angel, Maddy’s mother. “Doctors have struggled to diagnose the root cause of her illness.”
Jun
04
Posted by Gillette Children's Specialty Healthcare
Harrison is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Harrison and his family will discuss his health journey, Gillette Children's Specialty Healthcare’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Harrison.
Harrison was born with hypoxic ischemic encephalopathy, a type of brain dysfunction that occurs when the brain doesn’t receive enough oxygen or blood flow for a period of time. Then, when he was 2 years old, he was diagnosed with quadriplegic cerebral palsy. Harrison also has dystonia – a movement disorder where his muscles contract involuntarily.
Jun
03
Posted by Seattle Children's
Adrian and Maria Isabella are participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Adrian and Maria Isabella and their family will discuss their health journey, Seattle Children’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Adrian and Maria Isabella.
Adrian and Maria Isabella were both diagnosed with generalized anxiety disorder. Adrian also has ADHD. The family’s pediatrician referred them to Seattle Children’s Hospital where both kids were evaluated at the Pearl Clinic for ADHD and other learning disorders.
Jun
03
Posted by Children's Wisconsin
Austin is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Austin and his family will discuss his health journey, Children’s Wisconsin’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Austin.
In 2019, Austin’s family was going through a divorce and it affected him significantly. He would become upset without being able to describe why, began sleeping in late, experienced a significant weight gain and started withdrawing more.