Jun 06

Meet Ella: 2022 Family Advocacy Day Champion

Ella is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Ella and her family will discuss her health journey, Children’s Hospital Los Angeles’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Ella.

When Ella was two years old she was diagnosed with a stage 4, high-risk neuroblastoma. Neuroblastoma is a solid cancer of the nerve tissue of the sympathetic nervous system and stage 4 meant that Ella’s cancer had spread to other parts of her body.

Jun 05

Meet Maddy: 2022 Family Advocacy Day Champion

Madison AKA Maddy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Maddy and her family will discuss her health journey, CHOC Children’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Maddy.

Maddy has been sick off and on since birth. “There were always strange severe things with little explanation,” says Angel, Maddy’s mother. “Doctors have struggled to diagnose the root cause of her illness.”

Jun 04

Meet Harrison: 2022 Family Advocacy Day Champion

Harrison is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Harrison and his family will discuss his health journey, Gillette Children's Specialty Healthcare’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Harrison.

Harrison was born with hypoxic ischemic encephalopathy, a type of brain dysfunction that occurs when the brain doesn’t receive enough oxygen or blood flow for a period of time. Then, when he was 2 years old, he was diagnosed with quadriplegic cerebral palsy. Harrison also has dystonia – a movement disorder where his muscles contract involuntarily.

Jun 03

Meet Adrian and Maria Isabella: 2022 Family Advocacy Day Champions

Adrian and Maria Isabella are participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Adrian and Maria Isabella and their family will discuss their health journey, Seattle Children’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Adrian and Maria Isabella.

Adrian and Maria Isabella were both diagnosed with generalized anxiety disorder. Adrian also has ADHD. The family’s pediatrician referred them to Seattle Children’s Hospital where both kids were evaluated at the Pearl Clinic for ADHD and other learning disorders.

Jun 03

Meet Austin: 2022 Family Advocacy Day Champion

Austin is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Austin and his family will discuss his health journey, Children’s Wisconsin’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Austin.

In 2019, Austin’s family was going through a divorce and it affected him significantly. He would become upset without being able to describe why, began sleeping in late, experienced a significant weight gain and started withdrawing more.

Jun 02

Meet Oliver: 2022 Family Advocacy Day Champion

Oliver is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Oliver and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Oliver.

Oliver was born with a large mass on his chest, stretching from his sternum, underneath his arm, and onto his back.

Jun 01

Meet Pierce: 2022 Family Advocacy Day Champion

Pierce is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Pierce and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Pierce.

In April 2017, when Pierce was almost two years old, he started experiencing a low-grade fever. When he did not respond to antibiotics, his parents decided to admit him to their local hospital for lab work. The results of the lab work were concerning, and they were directed to Children's Hospital Los Angeles for a possible diagnosis of leukemia/lymphoma.

Jun 01

Meet Sarah: 2022 Family Advocacy Day Champion

Sarah is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Sarah will discuss her health journey, Children’s Hospital Los Angeles’ role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Sarah.

When Sarah was 11 years old, she was diagnosed with eosinophilic gastroenteritis, a rare autoimmune condition of the intestinal tract.

May 31

Meet Leone: 2022 Family Advocacy Day Champions

Leone is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Leone and his their family will discuss his health journey, Children's Health Children's Medical Center Dallas’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Leone.

When Leone was two years old, he was diagnosed with acute lymphocytic leukemia, a cancer that affects the blood and bone marrow. The specialists at Children's Health Children's Medical Center Dallas performed blood tests, a spinal tap and inserted a port for Leone’s chemotherapy.

May 30

Meet Melanie: 2022 Family Advocacy Day Champion

Melanie is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Melanie and her family will discuss her health journey, why Medicaid matters in her healthcare, Connecticut Children’s Medical Center’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Melanie.

When Melanie was 14 years old, she discovered a large mass on the left side of her neck. Her parents took her to see her pediatrician to run some tests and she was diagnosed with mononucleosis. However, six months later when the lump on her neck was still there, Melanie’s parents took her to a local hospital for a CT scan and they were referred to Connecticut Children's Medical Center.

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