Aug
07
Posted by Gillette Children's Specialty Healthcare
Elijah is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Elijah and his family will share information about his health journey, Gillette Children’s Specialty Healthcare’s role in providing Elijah with necessary health care services, and why the public and our elected officials must invest in the future of kids like Elijah.
A few days after the 20-week ultrasound, Corinne, Elijah’s mother, received a call requesting that she come back in to have more measurements taken. The tone of the ultrasound was different than the first, and ultimately confirmed that Elijah’s fibular bone in his leg was missing.
Aug
06
Posted by Yale New Haven Hosp
Sara is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Sara and her family will share information about her health journey, Yale New Haven Children’s Hospital’s role in providing Sara with necessary health care services, and why the public and our elected officials must invest in the future of kids like Sara.
Sara was diagnosed in utero with megacystis-microcolon-intestinal hypoperistalsis syndrome (MMIH), a severe disorder that affects the muscles that line the bladder, intestines and disrupts the digestive tract.
Aug
06
Posted by Mt. Washington Pediatric Hospital
Joseph is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Joseph and his family will share information about his health journey, Mt. Washington Pediatric Hospital’s role in providing Joseph with necessary health care services, and why the public and our elected officials must invest in the future of kids like Joseph.
During a prenatal exam, a large mass was detected in Joseph’s mother’s womb. It was later discovered that the mass was obstructing the development of Joseph’s kidneys.
Aug
05
Posted by Seattle Children's
Beckham is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Beckham and his family will share information about his health journey, Seattle Children’s Hospital’s role in providing Beckham with necessary health care services, and why the public and our elected officials must invest in the future of kids like Beckham.
When Beckham turned 4 years old, he seemed overly anxious and worried excessively. As time went on, he fixated on germs. He washed his hands so vigorously that they bled. At school, Beckham wouldn’t go into the gym because a kid was sick in there the previous week, he wouldn’t go out to dinner because of germs under the table.
Aug
05
Posted by Johns Hopkins All Children's Hospital
Hudson is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Hudson and his family will share information about his health journey, Johns Hopkins All Children’s Hospital’s role in providing Hudson with necessary health care services, and why the public and our elected officials must invest in the future of kids like Hudson.
Hudson was diagnosed at birth with a congenital brain anomaly, which affects his neurological development. He was in the NICU for the first 40 days of his life, where tests concluded that Hudson had more than 10 different conditions.
Aug
04
Posted by Nicklaus Children's
Mark is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Mark and his family will share information about his health journey, Nicklaus Children’s Hospital’s role in providing Mark with necessary health care services, and why the public and our elected officials must invest in the future of kids like Mark.
Mark’s parents struggled to find a diagnosis until they got to Nicklaus Children’s Hospital in Miami. He was diagnosed at 9 years old with a pseudotumor ceribri and reflex neurovascular dystrophy.
Aug
04
Posted by Connecticut Children's
Lauryn is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Lauryn and her family will share information about her health journey, Connecticut Children’s Medical Center’s role in providing Lauryn with necessary health care services, and why the public and our elected officials must invest in the future of kids like Lauryn.
Lauryn was born prematurely at only 25 weeks gestation, weighing just one pound, she faced significant health problems in her first few years of life.
Aug
03
Posted by Gillette Children's Specialty Healthcare
Madeline is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Madeline and her family will share information about her health journey, Gillette Children’s Specialty Healthcare’s role in providing Madeline with necessary health care services, and why the public and our elected officials must invest in the future of kids like Madeline.
Aug
03
Posted by Mt. Washington Pediatric Hospital
Maliyah is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Maliyah and her family will share information about her health journey, Mt. Washington Pediatric Hospital’s role in providing Maliyah with necessary health care services, and why the public and our elected officials must invest in the future of kids like Maliyah.
As an infant, Maliyah was diagnosed with Coffin-Siris syndrome, a rare genetic syndrome that affects several systems in the body.
Aug
02
Posted by Cincinnati Childrens
Logan is participating in Speak Now for Kids Family Advocacy Week from August 10-14, 2020. Through this special event, Logan and his family will share information about his health journey, Cincinnati Children’s Hospital Medical Center’s role in providing Logan with necessary health care services, and why the public and our elected officials must invest in the future of kids like Logan.
At just 3 weeks old, Logan was diagnosed with acute cerebral venous infarction with several other associated conditions.