Jun
12
Posted by Lurie Children's
Michael is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Michael and his family will discuss his health journey, Ann & Robert H. Lurie Children’s Hospital of Chicago’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Michael.
At one week old, Michael’s family knew they had a long battle ahead when he was diagnosed with sickle cell disease.
Jun
11
Posted by El Paso Children's Hospital
Susanita is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Susanita and her family will discuss her health journey, El Paso Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Susanita.
When Susanita was three years old, she was diagnosed with acute lymphoblastic leukemia, a type of cancer of the blood and bone marrow.
Jun
11
Posted by Texas Children's
Christiana is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Christiana and her family will discuss her health journey, Texas Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Christiana.
At 12 years old, Christiana’s lymph nodes in her neck were so enlarged that she couldn’t eat without difficulty, only weighed 55 pounds and she was sleeping 15 hours a day. Multiple specialists saw her in Albuquerque, but they could not figure it out. The lymph nodes kept getting larger and larger in her face and neck.
Jun
10
Posted by UCSFChildrensOakland
Amelia and Sarah are participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Amelia, Sarah and their family will discuss their health journey, UCSF Benioff Children's Hospital Oakland’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Amelia and Sarah.
Amelia and Sarah were both former foster youth and considered medically fragile when they were born. Amelia was born prematurely with cardiac issues and Sarah was born with hepatitis C and cardiac issues as well.
Jun
09
Posted by UCLAMattelChildrens
Kellen is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Kellen and his family will discuss his health journey, UCLA Mattel Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kellen.
When Kellen was three days old, his parents knew that something was wrong. After three years searching for an answer, the family finally got a diagnosis. Kellen has chronic intestinal pseudo-obstruction (CIPO) and gastric dysmotility.
Jun
09
Posted by Joe DiMaggio Children's Hospital
Kealy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Kealy and her family will discuss her health journey, Joe DiMaggio Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kealy.
Kealy’s parents were giving her a bath when they found a tiny bump on her skull. They took her to a pediatrician and were told to keep an eye on it. Once they noticed changes, they were referred to a pediatric neurosurgeon and scheduled the next day for tumor removal.
Jun
08
Posted by Joe DiMaggio Children's Hospital
Da-realis is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Da-realis and his family will discuss his health journey, Joe DiMaggio Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Da-realis.
One morning, Da-realis woke up with chest pain and breathing issues. He was admitted to the hospital and the doctors began running tests. The next morning everything began to go downhill. He was intubated, his vocal cords were damaged and then he was transferred to Joe DiMaggio Children's Hospital.
Jun
07
Posted by Wolfson Children's Hospital
Dylan is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Dylan and her family will discuss her health journey, Wolfson Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Dylan.
Dylan was diagnosed with gastroschisis, a rare defect where the intestine protrudes through the right side of the umbilical cord, during a prenatal ultrasound. Dylan was born with her small intestine, large intestine, stomach, kidney and liver outside of her body.
Jun
07
Posted by Mt. Washington Pediatric Hospital
Hannah-Vanyssa is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Hannah-Vanyssa and her family will discuss her health journey, Mt. Washington Pediatric Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Hannah-Vanyssa.
Hannah-Vanyssa was born with Tetralogy of Fallot, a complex birth defect of the heart.
Jun
06
Posted by Children's Hospital Los Angeles
Tommy is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Tommy and his family will discuss his health journey, Children’s Hospital Los Angeles’ role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Tommy.
Tommy’s mother, Cara, went into premature labor and after eight days she delivered Tommy at 23 weeks gestation. The original NICU was unable to provide the treatment he needed after about two months. However, they managed to keep her in labor for several days. The original NICU was unable to provide the treatment he needed after about eight weeks.