Jun 14

Meet Bobby : 2022 Family Advocacy Day Champion

Bobby is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Bobby and his family will discuss his health journey, Advocate Children's Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Bobby.

After Bobby was born, he was placed in the NICU and shortly after had a seizure. A CT scan showed he had a skull fracture with a subdural hematoma. Bobby also had significant bleeding of the brain that was pushing his midline shift completely over. He underwent emergency surgery right away and following had two subsequent surgeries.

Jun 14

Meet Caroline and Stephen: 2022 Family Advocacy Day Champions

Caroline and Stephen are participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Caroline, Stephen and their family will discuss their health journey, Children’s National Hospital’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Caroline and Stephen.

When Stephen was 3 years old, he was diagnosed with isovaleric acidemia (IVA), a rare genetic disease. The late diagnosis left him in a coma and on life support. As a result, he suffered a traumatic brain injury resulting in severe intellectual and developmental disabilities and complex health issues.

Jun 14

Meet Colin: 2022 Family Advocacy Day Champion

Colin is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Colin and his family will discuss his health journey, Lucile Packard Children's Hospital Stanford’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Colin.

Colin, nicknamed CJ, has a congenital heart defect that doctors first noticed at a 16-week fetal echocardiogram. He was diagnosed with Tetralogy of Fallot, with the absence of the pulmonary valve. 

Jun 13

Meet Oliver: 2022 Family Advocacy Day Champion

Oliver is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Oliver and his family will discuss his health journey, Nicklaus Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Oliver.

In December 2019, Oliver went to the ER with a fever and strong abdominal pain. He was admitted to the ICU for seven days—his blood counts were low, he had no immune system and two different forms of bacteria had taken hold in his system.

Jun 12

Meet Zac: 2022 Family Advocacy Day Champion

Zac is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Zac and his family will discuss his health journey, Joe DiMaggio Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Zac.

When Zac was a little over a year and a half old, he was taken to the ER because of a stomach bug and dehydration and was sent home a day later. However, soon after he started to lose the ability to walk or talk.

Jun 12

Meet Michael: 2022 Family Advocacy Day Champion

Michael is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Michael and his family will discuss his health journey, Ann & Robert H. Lurie Children’s Hospital of Chicago’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Michael.

At one week old, Michael’s family knew they had a long battle ahead when he was diagnosed with sickle cell disease.

Jun 11

Meet Susanita: 2022 Family Advocacy Day Champion

Susanita is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Susanita and her family will discuss her health journey, El Paso Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Susanita.

When Susanita was three years old, she was diagnosed with acute lymphoblastic leukemia, a type of cancer of the blood and bone marrow.

Jun 11

Meet Christiana: 2022 Family Advocacy Day Champion

Christiana is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Christiana and her family will discuss her health journey, Texas Children’s Hospital’s role in providing her with necessary health care services, and why the public and our elected officials must invest in the future of patients like Christiana.

At 12 years old, Christiana’s lymph nodes in her neck were so enlarged that she couldn’t eat without difficulty, only weighed 55 pounds and she was sleeping 15 hours a day. Multiple specialists saw her in Albuquerque, but they could not figure it out. The lymph nodes kept getting larger and larger in her face and neck.

Jun 10

Meet Amelia and Sarah: 2022 Family Advocacy Day Champions

Amelia and Sarah are participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Amelia, Sarah and their family will discuss their health journey, UCSF Benioff Children's Hospital Oakland’s role in providing them with necessary health care services, and why the public and our elected officials must invest in the future of patients like Amelia and Sarah.

Amelia and Sarah were both former foster youth and considered medically fragile when they were born. Amelia was born prematurely with cardiac issues and Sarah was born with hepatitis C and cardiac issues as well. 

Jun 09

Meet Kellen: 2022 Family Advocacy Day Champion

Kellen is participating in Speak Now for Kids Family Advocacy Day from June 12-14. Through this event, Kellen and his family will discuss his health journey, UCLA Mattel Children’s Hospital’s role in providing him with necessary health care services, and why the public and our elected officials must invest in the future of patients like Kellen.

When Kellen was three days old, his parents knew that something was wrong. After three years searching for an answer, the family finally got a diagnosis. Kellen has chronic intestinal pseudo-obstruction (CIPO) and gastric dysmotility.

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