Nova is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Nova will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.
Nova is an outgoing 8-year-old from Massachusetts who loves to read, build with Legos, play piano, and hang out with her friends.
Nova was also born with a rare craniofacial anomaly called Pfeiffer Syndrome. It affected the growth of bones in her skull, face, neck and arms, causing them to fuse before she was born.
#GoBig and Take the Pledge!
Thank you for joining Speak Now for Kids’ #GoBig campaign to increase awareness about the actions that anyone can take, from anywhere, to be a Champion for Children’s Health!
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