Champion for Children's Health

followed Meet William: 2019 2019-05-23 16:18:36 -0400

Meet William: 2019 Family Advocacy Day

William is participating at 2019 Speak Now for Kids Family Advocacy Day from June 25-26 in Washington, D.C. During the event, William will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

William had a hard start at life. From day one, the odds of survival for this twinless twin and micro preemie were low. He was born at 23 weeks weighing just 1lb 6 oz. William suffered seemingly endless bumps in the road, including bleeding in his lungs, numerous blood transfusions and surgeries, and a dangerous stomach infection called necrotizing enterocolitis (NEC). Despite these obstacles and challenges, this miracle micro preemie persevered—he survived it all.


published RSS in RSS Sign Up 2018-06-13 15:52:11 -0400


published RSS Sign Up 2018-06-13 15:48:31 -0400

Meet Nova: 2018 Family Advocacy Day Champion

Boston_Children's_Hospital_Cox__Nova_3.jpegNova is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Nova will share information about her health journey and the importance of children’s health care with members of Congress. Below is her story.

Nova is an outgoing 8-year-old from Massachusetts who loves to read, build with Legos, play piano, and hang out with her friends.

Nova was also born with a rare craniofacial anomaly called Pfeiffer Syndrome. It affected the growth of bones in her skull, face, neck and arms, causing them to fuse before she was born.


commented on Meet Christian: 2018 Family Advocacy Day Champion 2018-06-08 13:46:16 -0400 · Flag
Way to go, Christian!


published Pledge 2018-06-01 17:29:26 -0400

139 signatures

#GoBig and Take the Pledge!

 

Thank you for joining Speak Now for Kids’ #GoBig campaign to increase awareness about the actions that anyone can take, from anywhere, to be a Champion for Children’s Health!


commented on What Matters to You? 2017-07-10 14:49:43 -0400 · Flag
Thank you, Joyce!

commented on 2016 Speak Now For Kids Family Advocacy Day Hero: Christian 2016-06-16 19:06:09 -0400 · Flag
We can’t wait to meet Christian next week. Thank you for sending him such great thoughts. Make sure to follow Christian and the other participants via @speaknowforkids starting Tuesday on Twitter

commented on 2016 Family Advocacy Day Hero: Peyton 2016-05-17 16:24:03 -0400 · Flag
We can’t meet to meet Peyton!!


commented on Child Patients Save 2015 Family Advocacy Day! 2015-06-23 16:08:55 -0400 · Flag
Thank you!! I was great meeting you and your awesome family as well. — Kristin





tagged Jan Kaplan's Question about the Health Insurance Exchange with Important 2014-02-06 15:30:49 -0500

Question about the Health Insurance Exchange

I am shopping for a private insurance plan in the new health insurance Exchange (also known as “marketplace”). What are the top three things I should consider as I shop for a plan?