2016 Speak Now For Kids Family Advocacy Day Hero: Berne
Berne and his twin sister Maren, who both have cystic fibrosis, had a difficult start in life. Born prematurely, due to an intestinal obstruction, Berne has struggled with weight gain and bowel obstructions. To monitor his health and keep up with his treatments, Berne has to visit University of Iowa Children's Hospital at least six times a year.
Cystic fibrosis is a disorder that causes severe damage to the lungs and digestive system. Together Berne and Maren spend 90 minutes a day in therapy and take over 250 doses of medicine per week to help keep their lungs clear. While pointing out Iowa Children’s unique position as a teaching hospital, Berne’s parents express their firm belief that the hospital has saved their children’s lives on more than one occasion.
In addition to his love of school and playing sports, Berne is entrepreneurial and started a car wash with his sister at their house.