Blog

 

Meet Michael: 2018 Family Advocacy Day Champion

Michael is participating at 2018 Speak Now for Kids Family Advocacy Day from June 26-27 in Washington, D.C. During the event, Michael will share information about his health journey and the importance of children’s health care with members of Congress. Below is his story.

Michael enjoys life. He is always smiling and trying to make sure others are smiling as well. Michael loves watching and participating in many different sports — soccer, basketball, baseball, and just running around are among his favorite activities.

Michael was also born with Apert syndrome, a rare condition that causes his bones to fuse together. Michael has received treatment at Gillette Children's Specialty Healthcare since he was just two months old.

At Gillette Children’s, Michael has undergone cranial-vault surgeries, hand surgeries and foot surgery; he’s also benefitted from dental services and psychological services — all coordinated in one facility.

Had it not been for Gillette Children’s, Michael’s condition would be far more restrictive. But thanks to prompt interventions, Michael is living with very few limitations. His parents explain, “He is living a happy, almost normal life.”

Michael has faced his medical condition head on, and has endured many procedures with a positive attitude. He has refused to let his condition slow him down — Michael dreams big for the future. He is unsure what he wants to do when he is older, but he has talked about being a bus driver, doctor, athlete and sports broadcaster.

One thing is for certain, Michael can do anything he sets his mind to. As his parents proudly point out, “he is an incredibly resilient guy.”

Join us in welcoming Michael to 2018 Family Advocacy Day!


Showing 1 reaction


commented 2018-06-13 17:02:48 -0400 · Flag
Michael, I could not be more proud of you. I am sure those that know you will agree. You exhibit so many excellent qualities and are using the challenges you have faced in your young life for good. You and your parents have a very unique and real story to share that will touch those that listen to you. Thank you for being willing to reveal your life to help others.
Your family is beyond special!
Becky Holst