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Meet Kyle: 2017 Speak Now for Kids Family Advocacy Day Hero

Kyle was 5-months-old when his grandfather noticed that he was following people with his eyes, but not turning his head. He was subsequently diagnosed with spinal muscular atrophy (SMA), a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Over the next several years, Kyle was in and out of acute care facilities, with pulmonary and other medical issues.

rsz_hsc_pediatric_center_thomas_kyle.jpgDuring this time, Kyle received a trach, a GT tube, a metal rod along his spine to prevent further curvature, and was permanently placed on a ventilator. He has been admitted to the hospital, sometimes staying as long as ten months. Kyle was referred to The HSC Pediatric Center (HSC) for physical therapy and assistive technology therapies. At HSC, Kyle was fitted with and learned to drive a power chair and operate various communication devices. Kyle and his family credit his therapists at HSC with supporting his goal to achieve a level of mobility and communication independence that improves his overall quality of life.

Now 20-years-old, Kyle has not allowed his physical limitations to deny him opportunities to learn, engage with others and thrive. Described as a very smart, observant and compassionate person, Kyle enjoys spending time with his elders and babies. Kyle loves listening to music and watching action packed adventure movies. While he loves movies like the Fast and Furious, he still loves the Disney classics like Bambi and Aladdin, with the Lion King as all-time favorite.

Help us welcome Kyle to Washington, D.C.!


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