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Meet Kinsey: 2017 Speak Now for Kids Family Advocacy Day Hero

Kinsey was born with Truncus Arteriosis, a congenital heart defect (CHD), and DiGeorge Syndrome, a deletion of part of the 22nd chromosome. These two conditions have caused a number of medical complexities and have presented several challenges for Kinsey and her family. Throughout her life, Kinsey has had five open-heart surgeries, various illnesses and surgeries unrelated to CHD, and many other hospitalizations. Kinsey also went on ECMO (advanced life support) as a teenager to combat a serious lung condition.

Without the help of cutting-edge treatments and devoted doctors, Kinsey simply would not be here. She has persevered through every health crisis she has faced. Moreover, Kinsey has impressed her medical staff with her unwavering courage and an optimistic attitude. Kinsey credits God and her family for giving her the strength to overcome each health crisis.

rsz_levine_childrens_hospital_morgan_kinseyver2.jpgDespite learning disabilities related to her syndrome, Kinsey, now 19 years old, has graduated from high school and plans to attend York Technical College on a full academic scholarship. She then hopes to transfer to a university to further her studies and pursue writing and art. Kinsey is a shining example of a fighter, and she is living her life to the fullest.

“We have gotten to know many families of children with CHDs and I will tell you that kids with {these issues}are some of the strongest kids I know!” said Kinsey’s mother, Kristine. “They have a unique ability to recognize the fragility of life and they appreciate and seize every moment they have been given to live life to the fullest. They are fighters, they are strong, they are joyful and they are simply amazing!”

Help us welcome Kinsey to Washington, D.C.!


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