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Meet Jaylyn: 2017 Speak Now for Kids Family Advocacy Day Hero

Just hours after she was born, Jaylyn was diagnosed with trachea esophageal fistula and esophageal atresia (EA-TF), a condition resulting from abnormal development before birth of the tube that carries food from the mouth to the stomach. With this confirmed, the newborn was immediately transferred to a specialized neonatal intensive care unit (NICU), which was equipped to care for a newborn with her condition.

“We were scared to death, in complete shock and heartbroken. We could hardly pronounce 'Trachea Esophageal Fistula and Esophageal Atresia' and had never heard of it before,” said Jaylyn’s mom, Crystal. “We couldn't imagine how a baby could be born without an esophagus, much less survive without one.”

rsz_childrens_health_childrens_medical_center_dallas_wise_jaylyn.jpgCrystal described the months that followed as being a “very dark, scary time for us,” as the family was learning about EA-TF and adjusting to their new life. Though they have private insurance, Medicaid has been essential in providing assistance in out of pocket expenses not normally covered.

“We can’t put Jaylin in a regular child care center, so a nurse is the key to a positive balance for our family,” said Crystal.

Now 7 years old, Jaylyn doesn’t let her medical conditions define her; she knows they make her unique. Her conditions have inspired her to want to pursue a career in Neonatology one day so she can “help babies just like her get better.” Her strength, courage and continuous drive are values that make Jaylyn who she is: a hero.

Help us welcome Jaylyn to Washington, D.C.!


Showing 4 reactions


commented 2017-06-29 07:57:34 -0400 · Flag
Jaylyn is definitely a hero. Her family should be so proud.
commented 2017-06-28 18:22:26 -0400 · Flag
Jayltn is a vibrant child that brings a smIle to everyone who comes in contact with her. She has her moments but with the love and guidance she perseveres through it all the trials and tribulations so easily it’s hard to even know how hard she is fighting each and every day!
commented 2017-06-28 17:21:03 -0400 · Flag
Your daughter and family is an inspiration to all of us. Thank you for sharing your love and strength with the world. God bless you, Crystal, Jaylyn and entire family.
commented 2017-06-28 16:51:50 -0400 · Flag
So proud of this mini-advocate and hero!