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Guest Blog: CHIP Benefits are Worth Protecting

The day our son was born as the best and most terrifying day of my life. After going through an uneventful pregnancy and going into labor on my exact due date, our uneventful pregnancy was rocked to the core. At just three days old, our son, Noble Lett, was diagnosed with Prader-Willi Syndrome (PWS) after being taken to the neonatal intensive care unit.

We quickly learned that Noble would require a massive amount of medical care from approximately 13 different specialists to manage various physical and developmental issues, and delays. We also knew that he would require a daily injection of Human Growth Hormone – a medication with a hefty cost of approximately $1,000 a month.


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