Family Advocacy Day Hero -- Meet Amarey B.
Amarey B., Age 4
Hometown: West Hartford, CT
Hospital: Yale-New Haven Children’s Hospital, New Haven, CT
When meeting 4-year-old Amarey, you would never know this vibrant and energetic little girl lives with sickle cell disease. Sickle cell is a genetic disease in which the red blood cells are sickle (crescent) shaped, making it hard for them to travel through blood vessels to carry oxygen to different organs in the body. When Amarey gets sick, she experiences severe pain in her legs, arms and belly. Her hemoglobin sometimes drops, requiring a blood transfusion, and she may develop a respiratory infection, like acute chest syndrome. In addition to sickle cell disease, Amarey also battles asthma and severe allergies, which requires her to take six daily medications.
With all of this darkness in her life, Amarey is the shining star who brings happiness into the lives of everyone around her. Like most her age, she loves to sing, dance, go to the park and build with Legos. Every day she amazes her family with her accomplishments and learning milestones.
Fact: Approximately two-thirds of all children with medical complexity are covered by Medicaid.