We're parents, grandparents, teachers, nurses, doctors, hospital workers, teens — people like you, who care about how kids' health care affects our future. Join us and become a champion for children's health.
Aug 20

It’s That Time of the Year Again - Back to School

As the summer winds down for most of us it’s also time for parents and school-aged children to get ready for the big yellow buses to roll through the neighborhood and classes to begin. Besides the notebooks, backpacks and calculators, back to school prep includes necessary trips to your child’s pediatrician, dentist and eye doctor.

Aug 19

Children’s Mental Health Spotlight in Congressional Briefing

Briefing_Poster.jpgThis past Friday the Congressional Children’s Health Care Caucus held a briefing titled “Children’s Mental Health: The Importance of Early Identification and Intervention” for congressional staff at the Capitol Visitor’s Center.

Aug 05

Hip, Hip Hooray – CHIP is 17 Years-Old Today!

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My, how the years flew by.  On August 5, 1997, the Children’s Health Insurance Program (CHIP) was signed into law. And over the last 17 years, the percentage of uninsured children decreased by 50 percent!

Aug 05

August means Action for the ACE Kids Act – Are You Ready?

With Congress heading home for August, this is a great time to learn more about the ACE Kids Act of 2014 and how you can help shine a spotlight on this important legislation. 

Aug 04

Let the Thunder Roll

Throughout the month of August, Speak Now for Kids will focus on the ACE Kids Act of 2014, specifically encouraging our members of Congress to become champions for children’s health. We need YOU to help make a noise that your members of Congress can hear loud and clear!

 

Jul 24

Living with Juvenile Arthritis

Meg_W_Blog_2.pngJuly is Juvenile Arthritis Awareness Month. We asked Meghan Winkleman, an adult living with Juvenile Rheumatoid Arthritis, to share her experience with the Speak Now for Kids community.

Science has found the earliest we can recall memories is around 3½ years old. I was diagnosed with Juvenile Rheumatoid Arthritis (JRA) at 2 ½. I literally do not know a time in my life that I haven’t had arthritis. I was two when my parents first started seeing signs that something was not right with their toddler. I would wake up in the morning unable to walk but by the time we got to the doctor’s appointment a few hours later I would be running around like a normal two year old. The doctors probably thought my mom was being a crazy first time mom but she was persistent and after about six months a diagnosis was finally made.

Jul 22

A Parent’s View: The Importance of Children’s Hospitals

10370420_799767777399_4866938761443528178_n.jpgThe first time Boston Children’s Hospital saved my son’s life, he was 21 hours old. It wasn’t a surprise -- Joey had been diagnosed in utero with both a ventricular septal defect (VSD), a hole between the right and left sides of his heart, and a duodenal stenosis, where a portion of the intestine is so constricted that very little can pass through, by doctors in the Advanced Fetal Care Center. Upon birth, it was obvious that the latter issue would take precedence, and Dr. Smithers worked his magic in almost six hours. The second time came less than a month later, when his VSD and another heart defect -- an atrial septal defect (ASD), or a hole in the upper part of his heart-were repaired by the amazing Dr. Pigula.

Jul 15

Join Us to Learn More about CHIP

The Children’s Hospital Association will be participating in a “#WellnessWed” Twitter Chat under @speaknowforkids on Wednesday, July 23rd at 2:00 p.m. EDT

Jun 25

Family Advocacy Day Dinner Featured on Local Fox 5 News

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Tuesday night's Family Advocacy Day Patriotic Dinner and Celebration was an exciting night for super heroes -- big and small. Lauren DeMarco of Washington D.C.'s Fox 5 News was on hand to catch it all. 

Jun 25

Family Advocacy Day Hero -- Meet Zoey K.

ZoeyK.jpgZoey Nidhi K., Age 2
Hometown: Houston, TX
Hospital: Texas Children’s Hospital, Houston, TX

Less than a year ago, Zoey, who hails from Mumbai, India, was brought home to the United States. At 2 years old, she was just 25” tall, weighed 16 pounds and was below the 3rd percentile of height and weight for girls with achondroplasia, a form of dwarfism. After getting through some of her initial exams, Zoey has been able to avoid the need for any surgery to correct hearing loss or apnea, two common side-effects of achondroplasia. While her skeletal system seems to be intact currently, she is expected to require some level of orthopedic care in the future.

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