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Jul 20

Celebrating 50 Years of Medicaid on Wellness Wednesday

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Moms Rising will be hosting a “Wellness Wednesday” Twitter chat to celebrate the 50th anniversary of Medicaid on Wednesday, July 22. The chat will focus on the importance of Medicaid and discuss many questions people have about the Medicaid program.

Jul 16

A Family's Journey With Juvenile Arthritis

July is Juvenile Arthritis (JA) Awareness Month. Charity, a mother of two children with the disease, shares her family's experience when a lump on her daughter's leg was diagnosed as a type of JA

JA_blog_1.jpgExactly a year ago, we were preparing for a fun day on our friend's boat. Full ice chest, swimsuits, and great friends. As we were getting ready to swim, we noticed a strange, lumpy discolored texture going from Tessa's hip down to her knee on her right leg. After nearly 6 years of Isabel's arthritis, I knew this was concerning. After the holiday weekend, we made appointments with her doctor and we were referred to dermatology. Our appointment was in August, a few days before her birthday. Between July 5 and The August appointment, I lost track of how many times we heard, "wow, I've never seen anything like that!" Not reassuring to hear that from your doctor!

Jul 13

Help Medicaid Celebrate a Milestone

During the month of July, we will be celebrating Medicaid’s 50th birthday. Medicaid is a joint federal and state health insurance program created to serve as a safety net for America’s most vulnerable.

Medicaid is the single largest insurer for children. It currently provides comprehensive and affordable health care coverage to an estimated 33 million low-income children and children with disabilities.

Jul 08

Health Affairs Journal Features Medically Complex Child in Medicaid Issue

You may remember Lily as one of the children profiled during March’s Medicaid for Kids Month. Her father, Anthony Putney, shares the family’s story in the July issue of Health Affairs, a peer-reviewed journal focusing on health policy thought and research.

Jul 02

Stars, Stripes and Sparks: Tips to having a fun and safe Fourth of July

fireworks.jpgFourth of July celebrations often involve cookouts, swimming, parties and parades, all topped off with fireworks!

Firework safety is always important, but it is especially important to keep a close eye on children when lighting fireworks off at home. A few tips to help you have a fun and safe Fourth of July.

Jun 19

Child Patients Save 2015 Family Advocacy Day!

More than 230 people, including 44 child patients from across the U.S. and their family members, participated this week at the 11th annual Speak Now for Kids Family Advocacy Day in Washington, D.C. Patients ranged from one-year old to 19 years old with a variety of medical conditions. Their perseverance through challenging circumstances made them heroes in our eyes.

Jun 16

2015 Family Advocacy Day Hero -- Maisy

Martindale_Maisy.jpgAfter more than 32 surgeries, including a pacemaker placement and feeding tube, Maisy still shines brightly and loves life. Born to a drug addicted birth mother who was unable to care for her, Maisy was adopted at 18 months old while she still required a ventilator to keep her alive. At only 7 years old, she has already been through skull reconstructions, open heart surgeries and many other complex surgeries that have saved her life. Today, Maisy is thriving with the help of an amazing team of doctors and the love of her adoptive family. 

Jun 15

2015 Family Advocacy Day Hero -- Noah

R_3ymBjCvna8Ofc69_Nero.Noah_photo.jpgJust a day after birth, Noah was diagnosed with hypoplastic left heart syndrome. One side of his heart didn’t function properly and after three surgeries to repair it, doctors eventually put Noah on a waiting list for a heart transplant. At 5 years old, he received a new heart, but Noah still visits his team at All Children’s Hospital Johns Hopkins Medicine for follow-up cardiac care. In addition to multiple heart check-ups throughout the year, Noah also sees a handful of specialists for his cerebral palsy, lung disease, autism, osteoporosis, physical therapy, speech therapy, behavioral therapy and other medical conditions.

Jun 13

2015 Family Advocacy Day Hero -- Lauryn

Audrict_Lauryn.jpgLauryn was born prematurely at 30 weeks and placed in the NICU for two months due to failure to thrive. She had her first seizure three days after her first birthday, but lacked a clear diagnosis even after visiting several hospitals. Lauryn endured back to back hospital stays at Children's Hospital New Orleans due to pneumonia, status epilepsy, upper respiratory infections and loss of oxygen due to seizures. She was finally diagnosed at Texas Children's Hospital with cortical dysplasia as the cause for her intractable epilepsy and developmental delay. Asthma also contributed to her frequent hospital stays and her increase in seizures. Because previous seizure treatments were not successful, Lauryn underwent a frontal and temporal lobectomy in August 2013.

Jun 12

2015 Family Advocacy Day Hero -- Max

Page.Max.jpgMax is spirited boy who loves to act, golf, play baseball, and pal around with his brother Ellison. Though born with a heart defect—Tetralogy of Fallot—and equipped with a pacemaker, Max has never let any challenge slow him down. Thanks to the great team and care provided at Children’s Hospital Los Angeles, Max is able to lead a full and vibrant life.

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