“Down syndrome isn't something to be scared of. People with Down syndrome want the same things as all of us…they want to be loved and accepted” -- Jessica, mother of 2-year old Dominic.
Did you know that, according to the National Down Syndrome Society (NDSS), 1 in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition? Even though it is so common, there are still many myths surrounding this condition which affect how we interact with our own neighbors who happen to be individuals with Down syndrome.
Thank you to everyone who was able to join in on yesterday's very successful #WellnessWed Twitter Chat. With 139 contributors, including numerous hospitals and Dr. Jennifer Arnold, using the #WellnessWed hashtag more than 1.5 million people were able to learn more about children with medical complexity and the ACE Kids Act.
If you didn't have a chance to participate, we put together a Storify to allow you to follow along.
October marks Domestic Violence Awareness Month. Until recently, when talking about domestic violence not too many people think about the toll it also has on children.
On October 1, 2015—one year from today—the Children’s Health Insurance Program (CHIP) will no longer receive funding. Congress must intervene soon to save this CHIP, a program that works for kids and has a long track-record of success and bipartisan support in Congress.
On Wednesday, October 8, at 1pm ET, Speak Now For Kids will join Mom’s Rising for a Twitter Chat focused on children with medical complexity. Make sure to join us by following “#WellnessWed."
Hope to see you there!
As we close out National Preparedness Month, Sarah Thompson, MA, of Save the Children, shares the organization's recent findings regarding states, parents and the lack of both being fully prepared when disaster strikes.
Where are your children right now? Probably in school or child care learning today’s lesson or enjoying a juice box at snack time. But what happened if disaster were to strike? Do you know your caregiver’s plan? Do you know how you would reunite with your child?
“The Future of Autism” was the topic of the recent briefing held in cooperation with the Congressional Children’s Health Care Caucus and the Congressional Autism Caucus. Congressional staff who focus on health care issues were able to hear from experts in the field who provided and overview of autism spectrum disorder (ASD) and shared examples of how treatments and testing are changing as parents, pediatricians and other childcare professionals are learning more about the condition.
Characterizing this hearing as a “marvel,” U.S. Senator Jay Rockefeller (D-WV) couldn’t think of a more timely topic for his last Congressional Hearing on Tuesday before his retirement at the end of the 114th Congress. Though the Children’s Health Insurance Program (CHIP) itself is authorized to run until 2019, current funding is scheduled to run out by the end of Fiscal Year 2015 and individual states are running into issues as they work on their future budgets. Needless to say, there is a push to rectify this before it becomes problematic.
Thank you to everyone who signed up to support the ACE Kids Act Thunderclap. By allowing us to send a message through your social media accounts we were able to make some noise on Twitter, Facebook and Tumblr on September 8, and even reach over 112,000 people with a simple message to congress: "#Congress become a champion for children's health. #ACEKidsAct."
Want to help keep the spotlight on ACE Kids? Just head over to the Speak Now for Kids' Legislative Action Center and send a message to your U.S. Represntative today.
As the summer winds down for most of us it’s also time for parents and school-aged children to get ready for the big yellow buses to roll through the neighborhood and classes to begin. Besides the notebooks, backpacks and calculators, back to school prep includes necessary trips to your child’s pediatrician, dentist and eye doctor.