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Dec 02

Dr. Jen Arnold and Bill Klein on Good Morning America


Dr. Jen Arnold and Bill Klein were on ABC’s Good Morning America on Monday to promote the new season of The Little Couple. During the segment ABC Correspondent Amy Robach asked about Will and Zoey and mentioned the ACE Kids Act and Speak Now for Kids. Watch the interview here and take a couple minutes to visit the ACE Kids Act page to learn more and send your U.S. Representative a message.

Don’t forget to watch tonight’s premiered of The Little Couple at 9 p.m. ET/8 p.m. CT on TLC

Nov 26

Life Lessons From the ‘Little Couple

KAP_CHA_Advocacy_Day_2-054.jpgTravel. It’s a word my husband Bill and I are both intimately familiar with. While we have been blessed to experience recreational travel—when we first began dating and on our honeymoon— like many other families, from childhood on, travel was also something that was a necessity in our lives. We both were born with spondyloepiphyseal dysplasia (SED), a random genetic mutation to the COL2A1 gene which produces the building blocks of tissue in bone endings, the retina and inner ear bones. This malformed collagen results in short stature requiring corrective orthopedic surgeries, as well as vision and hearing complications.

Nov 17

Combating Antibiotic Resistance: Let’s Work Together!

The Centers for Disease Control and Prevention’s (CDC) 2013 Antibiotic Resistance Threats clearly highlights the increasing threat of antibiotic-resistant organisms in the United States. Without effective antibiotics to fight infections, patients infected with resistant organisms are more likely to have complications, or even die. Unfortunately, the threat of multidrug-resistant organisms is compounded with the lack of new antibiotic development; however, with the growing awareness of the public health consequence of resistant organisms, there has been more government support to recognize, combat, and prevent resistant bacteria.

Nov 13

Don’t be fooled by the term, a “Lame Duck Congress” may see action

us-congress.jpgNow that Election Day has past, the term “lame duck” has been thrown around by pundits trying to describe what happens on Capitol Hill during this post-election period. At first look, “lame duck” would have you believe that nothing happens in the days between the election and when Congress officially ends. However, this is not the case at all.

Nov 12

Join a Chorus of Supporters for CHIP

CHIP2014-facebook-1200x627.jpgThe Speak Now for Kids community is proud to count MomsRising as a friend and partner in our common efforts to promote the health care needs of children. So when we learned that MomsRising is collecting 20,000 signatures in support of the reauthorization of the Children’s Insurance Program (CHIP), well we wanted join in their campaign and hope that you will too.

Nov 11

Save the Date: The Little Couple Go to Washington!

KAP_CHA_Advocacy_Day_2-053.jpgIt is official. TLC’s The Little Couple season premiere has been slated for 9:00 pm (EST) on Tuesday, December 2. We hope you will be able to watch and celebrate as the family travels to Washington, D.C., to participate in the Speak Now for Kid’s Family Advocacy Day to help raise awareness about medically complex children. An issue that is extremely important to both Dr. Jennifer Arnold and Bill Klein, as they were treated for medical complexities arising from dwarfism as children.

Nov 10

Do you know the difference between type 1 and type 2 diabetes?

JDRF_2-Color_Logo_PNG.pngDid you know November is Diabetes Awareness Month? To help raise awareness, staff from the Juvenile Diabetes Research Foundation, also known as JDRF, discuss common myths on the Speak Now for Kids website today.

We all know a diagnosis of type 1 diabetes (T1D) is hard on families as they learn to cope with a number of changes in their daily life. While people care, it is all too common for them to ask questions that reflect a lack of knowledge about T1D, such as, “When will she outgrow it?” It can be frustrating to explain the battle that all families face every hour of every day, and that can be compounded by having to deal with people’s common misunderstandings and misperceptions between type 1 and type 2 diabetes, including the widely-held belief that T1D is not a serious disease. Here are some of those myths:

Oct 31

Your Voice is Important – Contact Your Member of Congress Today

1039861_10201476079844349_34927399_o.jpgThe Children’s Health Insurance Program (CHIP) is a very important program that will be a vital piece in an important puzzle for children’s health care. As the end of the year draws closer you have the ability to help make an impact before it’s too late.

Oct 16

Down Syndrome Awareness Month

IMG_57521607771204.jpegDomini“Down syndrome isn't something to be scared of. People with Down syndrome want the same things as all of us…they want to be loved and accepted” -- Jessica, mother of 2-year old Dominic.

Did you know that, according to the National Down Syndrome Society (NDSS), 1 in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition? Even though it is so common, there are still many myths surrounding this condition which affect how we interact with our own neighbors who happen to be individuals with Down syndrome.

Oct 09

Speak Now For Kids and Mom's Rising team up for a successful #WellnessWed

Thank you to everyone who was able to join in on yesterday's very successful #WellnessWed Twitter Chat. With 139 contributors, including numerous hospitals and Dr. Jennifer Arnold, using the #WellnessWed hashtag more than 1.5 million people were able to learn more about children with medical complexity and the ACE Kids Act. 

If you didn't have a chance to participate, we put together a Storify to allow you to follow along. 

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