2016 Speak Now For Kids Family Advocacy Day Hero: Javier
A patient at Gillette Children’s Specialty Healthcare since the age of 2, Javier sees more than a dozen specialists for management of spastic quadriplegia cerebral palsy—the most severe form of the condition. He also has epilepsy, dysautonomia and neuromuscular scoliosis.
Until recently, the curve in Javier’s spine was nearing 90-degrees, compromising his breathing, crushing his organs and causing him pain. His mom, Eleesha, feared that summers in Alaska might end. That’s when Javier’s spine surgeon suggested a new technology called magnetically driven growing rods, which are metal rods that straighten the spine without the need for frequent invasive surgeries.
According to his surgeon, after the rods were implanted in January 2015, the curve of Javier’s decreased his curve by more than 50 percent. This correction alleviated his pain and helped with other issues as well. Currently, Javier just needs routine adjustments, which only take less than 30 minutes—and best of all, they’re pain-free.
Today, just a year and a half after his surgery, Javier can’t wait to spend his summer in the wilds of Alaska where he hopes to catch another big fish. The 11-year-old’s future is filled with plans of fishing, hiking and boating on the ocean.