2016 Speak Now For Kids Family Advocacy Day Hero: Sophia
With an always present smile on her face, Sophia defies all odds. Delivered early due to intrauterine growth restriction (IUGR), a condition in which an unborn baby is smaller than she should be because she is not growing at a normal rate inside the womb, Sophia was eventually diagnosed with cerebral palsy. In addition, she carries a host of other diagnoses such as right hemiplegia, microcephaly and developmental delays. However, this did not stop Sophia from doing all that she was meant to do.
When first diagnosed, there were many unknowns in regard to her abilities, both physical and cognitive. Sophia continued to receive weekly therapy at Blank Children's Hospital and at home through the Area Education Agency. This aggressive treatment plan, along with the overarching and collaborative care of her medical team, helped Sophia achieve milestones and defy many of the odds that were against her. She is now a thriving five-year-old who continues to work hard every day, but also reaps the benefits of all her hard work as she lives a happy, healthy life.
Often referred to as a “warrior,” Sophia is perhaps best described as tenacious. She perseveres through anything that is thrown her way and she does it with flair. At home, Sophia loves to play outside with her sister and friends. She just finished preschool with the support of special educators and will go on to prekindergarten in the fall.