2015 Family Advocacy Day Hero -- Sean

R_dcn1rSjBLkdbiAt_sean_madden.JPGSean was born at 35 weeks gestation and, after being diagnosed with hydrocephalus and Dandy-Walker syndrome (a condition that affects brain development and movement), spent the first month of his life in the neonatal intensive care unit.

At 4 years old, he successfully completed the six week feeding day program through the feeding clinic at Mt. Washington Pediatric Hospital. His mother recalls watching through a one-way glass as Sean ate bacon, and crying in excitement because Sean was trying and liking new foods. Completing the feeding program was a turning point for Sean and his family.

Considered developmentally delayed, Sean continues receiving occupational and physical therapy to address his handwriting and balance. Sean is also seeing a cardiologist and pulmonologist, and continues to visit the feeing clinic. Dr. Katz, the hospital’s chief medical director, calls Sean "the Mayor of the Feeding Clinic" because he is very friendly and embraces relationships with both peers and adults.

Now 6 years old, Sean loves cars, Legos, and downloading new apps on his iPad. He is curious and silly and a joy to his parents.

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