2015 Family Advocacy Day Hero -- Kate
When she was 4 years old, Kate was diagnosed with Spinal Muscular Atrophy. SMA, a genetic, progressive, degenerative disease, is a form of muscular dystrophy that causes muscle weakness and other neurological, respiratory and orthopedic issues. There is currently no cure or treatment for SMA, which is the number one genetic cause of death for infants. Now 16, and a sophomore in high school, Kate’s mobility has become limited. Although once able to run, dance and climb stairs, Kate now uses a wheelchair to cover long distances in places like school or the mall.
Kate and her family do not take for granted the incredible care she has consistently received through the years at Boston Children's Hospital. They consider themselves lucky to live only 20 minutes away from amazing doctors, nurses and staff. With her Boston Children’s Hospital team by her side, Kate knows that the possibilities for her future are limitless. She has college in her plans and will not let SMA get in the way of her dreams.